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A few of my favorite ALS videos & some that I have put together on my own. Enjoy!

 
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  • 5th week Reflection
    by katiejnic@yahoo.com on July 30, 2015 at 6:51 PM
    506 Views - 0 Comments

    The best present is your presence. mmhmm that's right The materialistic gifts will fade/break/get lost/lose their shine, your presence and the memories you create, will last a lifetime..err as long as our minds will allow us to keep them! Near or far, make yourself present in the lives of those you care about. A huge Thank You to those that have made themselves present in my life, especially the past 2 months. The calls, messages, cards, wine :)

  • ALS Ice Bucket Challenge 2014
    by katiejnic@yahoo.com on July 30, 2015 at 6:44 PM
    573 Views - 0 Comments

    Katie and Joanna Nicholson remember August 13, 2008 clearly. That?s the day doctors diagnosed Nick Nicholson, Katie?s father and Joanna?s husband, with ALS. ?I knew there was nothing you could do about it,? says Katie. ?You?ll slowly see your loved one lose everything. And the sad part about it is, their mind is still intact,? Joanna says. ?There?s no known cause, there?s no effective treatment, and there?s no known cure, it?s always fatal.? When a person has ALS, the brain slowly loses its ability to control muscles in the body. For Nick, it started in one foot, and spread upward to the rest of his body. ?He stopped being able to eat without choking in 2010,? Katie says. ?Then he got a feeding tube and got the [tracheotomy tube] August 17 of 2011. Today, Nick can no longer move his head or speak. He can smile, and his family and nurses seem to read his eyes to understand what he?s feeling or thinking. Still, the Nicholsons consider themselves lucky, because Nick?s a Navy veteran. The VA covers the medical costs of ALS because some research shows a connection to military service. The disease financially cripples other families. Joanna says funding for them is just part of what makes the Ice Bucket Challenge so important. ?From a more emotional point of view, it?s got us out there. I [would] drive around with a sticker on the back of my van and people say ?Who?s Al??? she says. ?What I?m hoping is that it?s not a flash in the pan, that the association and the chapters take this and build on it.? The Nicholsons watched as friends at Jazzercise in Virginia Beach did one big ice bucket challenge, which raised more than $1,000 for the ALS Association. It?s not the only one they?ve seen, and it probably won?t be the last. ?We went down to Waterman?s and saw all them do it,? Katie says. ?We had my mom outside of his window so he could see her.? Every bucket challenge helps the Nicholsons, not just because of funding or awareness, but because smiling is just about all Nick can do anymore. ?He got a good laugh. He thinks we?re all crazy,? Katie says of her dad?s reaction to the challenges. ?It?s just really fun. I don?t want it to end.? Katie helps other families who have loved ones newly diagnosed with ALS.

  • HARK'S Hope on the Horizon Documentary T...
    by katiejnic@yahoo.com on October 8, 2013 at 2:53 PM
    1298 Views - 0 Comments

    http://www.hark-als.org/hope-on-the-horizon.html

    The first step in “Changing the way the world views ALS” is to ensure that the world knows what the disease is and how devastating it is to families that are affected by it. As we navigated our way through ALS we realized the severe lack of awareness that existed about this disease outside of the ALS community.

     

    Hope on the Horizon is not just about ALS, it’s about facing life’s challenges with courage and overcoming seemingly insurmountable odds every day. The documentary will bring viewers a firsthand view of two sets of challenges simultaneously.

     

    The challenges of negotiating the fragile beauty and rugged terrain of the White Mountains will serve as an engaging storyline used to teach the world about the true challenges and hardships faced by ALS victims and their loved ones in dealing with this devastating disease.

     

    Through this film HARK will change the way the world views ALS, increase awareness of this fatal disease and raise funding to provide resources to ALS patients and their families that need assistance in facing a challenge far greater then the White Mountains.


  • "Spin your ALS off!"
    by katiejnic@yahoo.com on December 4, 2012 at 12:32 PM
    1001 Views - 0 Comments

  • A world with out ALS- a love story
    by katiejnic@yahoo.com on September 21, 2012 at 10:44 AM
    949 Views - 0 Comments

    One of the most inspiring videos I have seen. Just found myself tearing up at my desk. A mixture of happy/sad emotions.

  • An Act of Fairness
    by katiejnic@yahoo.com on August 8, 2012 at 1:40 AM
    1182 Views - 3 Comments

    Facing ALS (Lou Gehrig's Disease), is a challenge that requires courage beyond anything we can imagine. Claire Collier not only had the courage to face this terrible disease, she became a national advocate taking her fight all the way to Washington to change laws and improve lives.

  • Mike Oyer, original member of SEAL Team ...
    by katiejnic@yahoo.com on August 7, 2012 at 11:16 AM
    2471 Views - 0 Comments

    Michael Oyer, a former Virginia Beach Navy SEAL, passed away Sunday night after a hard fought battle with ALS. Oyer began showing symptoms of ALS in 2006, and was officially diagnosed with the disease in 2007. NewsChannel 3 has been following Oyer and his family?s efforts to raise money for ALS research for several years. ALS, or Lou Gherig?s disease, attacks motor neurons and slowly chips away at one?s ability to speak, walk, talk and breath. There is no known cause or cure.

  • ALS Advocacy Day
    by katiejnic@yahoo.com on May 8, 2012 at 5:01 PM
    847 Views - 0 Comments

    Check it out! Great video showing what exactly the day entails.

  • A collection of videos
    by katiejnic@yahoo.com on April 17, 2012 at 11:28 AM
    873 Views - 0 Comments


  • Often Awesome!
    by katiejnic@yahoo.com on April 16, 2012 at 5:25 PM
    771 Views - 0 Comments

    From the Often Awesome Site:

    Often Awesome the series is a web series that follows Timothy LaFollette (29) who was diagnosed with ALS (Lou Gehrig’s Disease). We created 34, 10 minute episodes from diagnosis to his passing. As hard as it is to feel his loss, it is a beautiful tale about love, hope, community, friendship and courage.

    http://www.allacesmedia.com/oftenawesome/

  • Alison Krauss
    by katiejnic@yahoo.com on April 16, 2012 at 12:41 PM
    803 Views - 0 Comments

    I put this video together in hopes of getting it to the right person to help set up a "meet and greet" for my dad with one of his favorite singers, Alison Krauss.

    For better quality, go to my vimeo site: https://vimeo.com/40156833

  • Highschool student
    by katiejnic@yahoo.com on January 13, 2012 at 2:18 PM
    645 Views - 0 Comments



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