Whatever you do, don't

  • Panic- Whether you are the one diagnosed with ALS or a loved one, don't panic. Take this time to be with family and loved ones and once you have gotten over the initial shock of the diagnoses, contact your ALS Association Chapter and/or MDA-ALS Division Chapter. I will go more into this later.
  • Google/look up ALS on the internet, don't do it!- The internet is full of incorrect and just plain scary information. Go to sites such as: www.alsa.org or www.als.net
  • Give up- The biggest lesson I have learned from this disease is that you can't give up. Don't give up on yourself or ones around you. Continue to do the things that make you happy as long as your body allows you to.  Embrace each day.

Diagnosed, NOW WHAT?!